Travel agent Jenny Jackson has good days and bad days. On a good day, she goes about her day as normal; speaking to one of her many loyal clients, suggesting suitable destinations, processing bookings.
On a bad day, Jenny forgets to call back customers, abandons paperwork mid-way, gets up to make a cup of tea and forgets what she’s doing. This is because Jenny has vascular dementia.
She is, however, determined to carry on doing what she loves best – selling holidays.
“Is today a good day?,” I ask, when we chat over Zoom on a rainy morning in March. “Well, it’s a Monday,” she laughs, “and that’s never a good day, with or without dementia.”
A sense of humour, says 71-year-old Jenny, is what keeps her going. That, and the fact she lives in London – “people don’t understand how expensive living in London is until you’ve lived here”.
So, how does someone with dementia continue working, particularly as a busy travel agent dealing with admin, queries and changing itineraries? It’s not always easy, admits Jenny, but she’s not yet ready to give up the career she loves.
Jenny began her travel career later in life after 23 years working for Harrods. In her late 40s – and, in her words, "fed up with the commute" – she decided to try something different. “I started working in this place in Bromley called Daybreak Travel. It was quite a big career change but I’m a saleswoman. I could sell ice to an Eskimo,” she chuckles.
Jenny realised very quickly that she “absolutely loved travel”. “I could still see myself going to work when I was old and grey with my Zimmer frame, blue rinsed hair and stockings.” Which is why when Jenny eventually left Daybreak Travel. She stayed working in travel, joining several different businesses before signing up as a homeworker for Holidaysplease in 2022.
It’s also why 27 years later, Jenny is still booking holidays and refusing to be beaten by dementia.
Her first sign that something was wrong was in Christmas 2019. “I was wrapping presents, I’d made a cup of tea, sat back down on my sofa, and suddenly had a pain go through my head like I’ve never experienced before. I was shaking. I was delirious.”
Jenny called 111 and was immediately admitted to hospital – cue a 19-hour wait in A&E “with no painkillers” – before a doctor informed her she’d suffered not one, but two ruptured brain aneurysms, a life threatening condition which causes blood to spill into surrounding brain tissue, placing excess pressure on the brain.
It was unclear what exactly caused the aneurysms. All Jenny knew was that she had to undergo an immediate operation where she was told she had a 30% chance of survival.
Despite this, the operation went well and Jenny recovered – although she now has platinum in her head: “my friends want to know if I’m worth any money!"
She should have spent six months recuperating, but the pandemic hit, and like all travel agents Jenny was suddenly faced with a raft of booking amendments, supporting clients, and overwhelmingly long days.
Two years passed. And one day Jenny got in the car to visit a friend. “I was in the car and got to the end of my drive and I suddenly realised: ‘I don’t even know who I’m going to see’.”
“It scared me,” she admits. “And then I noticed that I had periods of forgetting things and losing things and I thought, I need to get this checked out."
An appointment was made with a neurologist, who then referred her to a neuropsychotherapist, who conducted a series of tests on Jenny, eventually diagnosing vascular dementia.
No one really knows what causes the condition, but medical research suggests pressure on the brain (such as from ruptured brain aneurysms) can increase and contribute to the likelihood of the disease.
Its progression varies. For some people the disease develops slowly. For others, symptoms can appear suddenly. For Jenny, the advancement of the dementia fortunately seems to be on the slower side. But two years on, she admits she’s noticed changes. “I struggle now,” she confesses. “I’m forgetting more things. It’s my short-term memory that’s the problem, my long-term memory still seems quite good.”
She’s made “lifestyle changes”; stopping drinking, losing weight, eating more healthily and regularly playing “brain training games”, in a bid to slow the disease’s progression. And she’s changed the way she works. “Before, I could work on five or six enquiries at a time. Now I have to work on one [at a time]. I won’t start another one until I’ve come to a conclusion with that first one.”
Her clients are thankfully, loyal, supportive – and financially comfortable. Jenny proudly reads out a message she received the day before from one customer who she’d just told about her condition.
“She replied to say: ‘Bless. Your travel advice is too special not to give out’,” Jenny smiles.
But as supportive as her clients are, Jenny says it’s hard not to feel embarrassed when she sometimes forgets to call them back or respond to queries. “They have to keep chasing me, which I don’t like, and there’s nothing I can do about it."
Her kitchen cupboards are adorned with Post-It notes, she says, “just so that I know what I’ve got to do as I live alone”. And she sometimes struggles with day-to-day life. “Sometimes I’ll be watching a TV programme and it’ll go onto the adverts and I don’t even know what I’m watching.”
But despite the challenges, Jenny doesn’t want to retire any time soon. “I’m not there yet. I do have good days and bad days. I didn’t have a good week last week. I had quite a lot of anxiety last week.”
What does a bad day look like? “Some days I just lose my mojo and I don’t want to do anything. And then I get upset because I’ve now given myself more work to do. But they’re very supportive at Holidaysplease,” she adds.
Jenny explains that when she makes a booking “they check it all for me". "I don’t ask them to do it but they offer to," she insists.
“If there’s something that I’ve done wrong; if I’ve forgotten to put the client’s date of birth in or I’ve forgotten to put the middle name in, it will come up as a red flag on our system.” Jenny also makes sure to work with “the same few tour operators that support me”. “These tour operators are patient with me, because I need to check everything over.”
It’s the admin which Jenny admits often poses the biggest problems. “I hate admin so much. I’ll be in the middle of something and then I might lose interest go and make a cup of tea and forget what I was doing.”
That’s when the Holidaysplease team step in. “They will remind me that I haven’t done this yet; they say ‘don’t worry I’ll do it for you’.”
One of the biggest challenges for Jenny is industry events. Matching up names and faces is often a real struggle, she says. “Sometimes I go to travel agent events and people say to me: ‘Hi, Jenny, how are you?’ And I think, God, who the hell’s that?’
“I always say to people to please don’t be offended if I don’t recognise you or don’t say hello to you. I honestly don’t know who you are and I do apologise. I may think about it afterwards and I’ll feel bad.”
Despite this, Jenny is resolute in her commitment to staying on top of the latest industry developments. She says she still enjoys fam trips and even travelled to the Clia RiverView conference earlier this month.
She also has a plea for others in the industry. “I would urge people to be a respectful of an illness like this; it controls your life.
"There needs to be more compassion towards people in general [in travel]. Not just with dementia, but those who are suffering with mental stress,” she says. “Working in travel is stressful. [Being an agent] is a stressful job. And to do our job properly, we often cause that stress.
“I want to speak out about this,” Jenny insists. “You can’t sweep things under the carpet. I feel that by speaking out, it helps me to deal with it. And hopefully it will help others.”
Do you have an interesting story to tell about your life as a travel agent? Let us know! Email editor Sophie Griffiths - sgriffiths@ttgmedia.com
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